Governance

ICPerMed is organised around an Executive Committee consisting of its members, with an elected chair and two vice-chairs. The executive committee is supported by five working groups (see challenge groups) and the ICPerMed Secretariat. The Steering Board is a sub-group taking care of the consortium’s everyday work. Interested organisations and initiatives not eligible as ICPerMed members can take part in the stakeholder group.

ICPerMed organisational structure

Executive Committee

ICPerMed is organised around an Executive Committee which includes representatives nominated by member organisations. Members include ministries, public and private ‘not-for-profit’ health research funding and policy organisations (see members). The Executive Committee is at the very centre of ICPerMed’s structure, being the main decision making body.

Chairs

A chair and two vice-chairs for the Executive Committee were elected for two years. Their job is to chair at Executive Committee meetings and to lead the Steering Board, the sub-group taking care of the consortium’s everyday work.

Challenge Groups

The Executive Committee is currently supported by five working groups, the so-called challenge groups. The focus of these groups is derived from the five overarching challenges in personalised medicine that were identified in a previous project, PerMed. In each group, high-level experts in their field work together with members nominated by the Executive Committee on developing solutions for their specific topic.

ICPerMed Challenge Groups

The five challenges and their corresponding challenge groups integrate expertise across the entire healthcare value chain. In ICPerMed’s view, this is the key for addressing the truly cross-sectoral nature of personalised medicine. Each challenge group is chaired by a so-called 'facilitator' who was chosen from and elected by the Executive Committee.

Here are some examples of questions that the challenge groups tackle:

  1. How can we enable patients and citizens to make decisions about their prevention and treatment strategies on a truly informed manner?
  2. How can we protect our health data in a fruitful way, for the benefit of every individual but still enabling research and innovation with added value for our society as a whole?
  3. How can we improve the translation of basic research results into clinical research and beyond?
  4. How can we facilitate innovation in personalised medicine enabling our economies to foster and ensuring equity and access for European societies?
  5. How can we shape healthcare in a way that maximises health benefits for the population as a whole while at the same time ensure the sustainability of the health systems?

Steering Board

For organising the consortium’s everyday work, a Steering Board was formed. It consists of a chair and two vice-chairs and the challenge group facilitators. In addition, the ICPerMed Secretariat and the European Commission take part in the Steering Board.

These  are the current members of Steering Board:

Function First Name Last Name Organization Country
Chair Mairéad O'Driscoll Health Research Board Ireland
Vice-Chair Ain Aaviksoo Deputy Secretary General on E-Services and Innovation, Ministry of Social Affairs Estonia
Vice-Chair,
Facilitator Challenge 2
Wolfgang Ballensiefen German Aerospace Center (DLR), Project Management Agency Germany
Facilitator Challenge 1 Maria Judit Molnar Ministry of Health Hungary
Facilitator Challenge 3 Hemma Bauer Federal Ministry of Science, Research and Economy Austria
  Monika Frenzel L’agence national de la recherche (ANR) France
Facilitator Challenge 4 Peter  Høngaard Andersen Danish Innovation Fund Denmark
Facilitator Challenge 5 Gaetano Guglielmi Ministry of Health Italy
EC Irene Norstedt Personalised Medicine Unit in DG Research and Innovation European
Commission
Secretariat Ulrike Bußhoff German Aerospace Center (DLR), Project Management Agency Germany

Stakeholder Group

Full ICPerMed membership is restricted to ministries, public and private ‘not-for-profit’ health research funding and policy organisations. However, many other stakeholders have a strong interest in personalised medicine, e.g. research institutions, patient initiatives, related projects or industry organisations. Through its stakeholder group, ICPerMed is in close contact with all these interested parties. Members of the stakeholder group are informed about ICPerMed’s work and invited to workshops and conferences to be part of ICPerMed. Experts and stakeholders are also invited to Executive Committee meetings for information and discussion on certain topics.